PKU.com Community Discussion Forum Parent support Hi from Cornwall England Reply To: Hi from Cornwall England

#7695
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BreaMarie91
Member

Hi Sue,
I have been on Kuvan for a year now. Since beginning Kuvan my phe tolerance has gone from 300 mg of phe to 1030 mg of phe and my formula intake has decreased a little bit. I have two sisters who also have Classical PKU. Erica is ten, but she choose not to try Kuvan and Genavieve is three months.
If you ever want to talk to me feel free to message me! nBre

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