PKU.com Community Discussion Forum Parent support Hi from Cornwall England Reply To: Hi from Cornwall England

#7729
Avatar of Sue
suepkutalks
Member

Hi Tracie we are all fine, ben is actually ok about his pku he just didnt show much interest in speaking on this talk site at first, although he does have a read when i’m on sometimes now and is interested in what other pku’s have to say, which is an improvement. He’s at football training at the moment, which is his favourite thing to do, he trains every saturday morning and has a game on sunday morning, its wet today (haha sunny Cornwall) so he will come home really muddy no doubt. Hows it goin with the kuvan, have you had many side effects with it? Do you know anything about the peg-pal treatment thats being tested out there at the moment? It sounds really exciting news for pku’s!
Speak to you soon
Sue

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