PKU.com Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

#7731
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monika26
Member

oh im devestated..we had dna testing done to help in letting us know what level Pku matthew has,,I finally got results yesterday and nothing..it wasnt informative enough to tell us. All we know is that it is PKU.So now we either do more testing or put Matthew on in patient to the hospital so that they can monitor when he eats and take blood right away to see what is going on and why his levels are really low one week and really high the next for no reason…any ideas on why that might be

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