PKU.com Community Discussion Forum New to PKU.com pku and have an eating disorder can any1 help Reply To: pku and have an eating disorder can any1 help

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pkusince62
Member

Hi. I have pku and was treated for eating disorders in my 20’s. One thing I would suggest is for you to seek treatment for your eating disorder, if you aren’t already, and make sure those treating you know about your pku. Another approach would be to go to a PKU specialist or clinic and let them guide you towards treatment for your eating disorder. I’m in somewhat of a similar situation now. Instead of an eating disorder, I have recently been diagnosed with coronary heart disase. That requires a significant lifestyle change including special diet, exercise and medication. I’m not currently on the PKU diet though. I’m 46 yrs old-will be 47 in a couple of months.

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