PKU.com Community Discussion Forum What’s the Phe? Kuvan Reply To: Kuvan

#7738
Avatar of Tracie
Tracie_PKU
Member

Hi Gerard, nFirst contact your Dr.,and he can tell you if Kuvan would even benfit you by what type mutation you have.
I have contacted Biomarin they are located in San Fransico,Ca.
Here is there Phone # 415-506-6700 nFax #415-382-7889 nThey will need your Drs. Approval along with Written perscription. nThen Biomarin will send you a form via Fedex,sign it fax back,and you get your pills following week.(depending on your location)
I hope i was helpful for you. nGood Luck!!!!
I start mine next week..
Take Care, nTracie-PKU

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