PKU.com Community Discussion Forum Parent support Positive PUKer’s Reply To: Positive PUKer’s

#7745
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jammnm
Member

Hi I have three boys. My youngest is 19month old with pku. It was quite a shock when we found out that he had pku because there was no history of it in our family. He is a very happy healthy toddler that gets into everything and he makes sure that his opinion is known. The hardest part of the diagnosis for me was the diet, and the first few months were the hardest. Once I understood the diet everything else fell into place. It has become second nature for me to figure out what he can eat . The diet can be hard to follow but I think that it is only as hard as you make it. If you treat it like an impossible challenge it will feel that way, but if just take one day at a time it does not feel so overwhelming. So my advice is simply follow the diet and your baby will be just as wonderful as every other baby in the world!

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