PKU.com Community Discussion Forum Parent support Positive PUKer’s Reply To: Positive PUKer’s

#7746
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BreaMarie91
Member

Hi,
Although having PKU has its ups and downs I do not regret being born with it because the reality is there are many worse disorders out there. At least with PKU I am able to function in society, others aren’t so lucky . For the past two years my mom and I have been asked to speak to medical students about PKU at the Medical College of Wisconsin and every year my dietitian asks a seven year old boy born with MSUD (another disorder) and his grandmother to speak as well. His disorder is life threatening and almost anytime he becomes sick he has to be hospitalized. With PKU our levels do go up a bit if we’re sick, but we definitely do not need to be hospitalized. My dad

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