PKU.com Community Discussion Forum New to PKU.com I’m back Reply To: I’m back

#7753
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Tracie_PKU
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Hi Amanda-Christine, nWow you are pretty busy.Thats awesome!
I am actually just starting to do alot of volunteer talks at schools regarding PKU,and Anorexia.
In my community i am the only one with PKU so alot of Drs out here find it very exciting. nMy family Prac is one who is not familar with PKU at all so i am actually educating her and her staff on it.LOL
I just started Kuvan,but don’t feel much different.Plus its only been awhile so hopefully i’ll feel something soon. nAlso i just had my PHE check done,and should know what my levels are in a day or two.
Anyways keep in touch its been great talking with you. nTake care!
Tracie-PKU

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