PKU.com Community Discussion Forum That’s PKU life! How do you keep your level down? Reply To: How do you keep your level down?

#7864
Avatar of ashley
aliwalker
Member

hi i new to this site and i think its great!!
I dont have PKU but my niece does so im trying to learn as much as i can about it!!
how improtant is it keeping your levels down what does it do to you if you let it get high the reason i want to know is my siter in law her daughter was born with PKU 7 yrs ago so none of us had ever heard of it back then.. and when is was 4 yrs old the child services stepped in and took her lil girl from her cause they said cause her phe levels were staying to high and she never got her back so now the lil girl is 7 and still in the states custody..[/COLOR]

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