Community Discussion Forum Adults and PKU PKU at 50 Reply To: PKU at 50

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Hello to all those 50 year olds with PKU. I am 50 with PKU and am glad to find someone my age. I was diagnosed at birth with PKU. I was taken off diet at age 5 was off most of my life until my husband and I got pregnant. I was not the diet then. My daughter is grown and is only a carrier of PKU. She has 2 kids who are PKU free. Well worth staying on the diet when pregnant. I went on diet a few years ago and had to come off because of finances. I had no insurance and my dietition was trying to get me insurance help and no one would help. So I am off diet now and am considering going back on, but not sure I can swing it as I have no insurance and jobless at this time. Anyway still thinking about it. Thanks for listening.

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