PKU.com Community Discussion Forum That’s PKU life! PKU Documentary Reply To: PKU Documentary

#7877
Avatar of Jean
Jaycee
Member

Hi Tracey,
I love the sound of your documentary. I have just started compiling a book of pku life stories, along a similar line. I’m including the stories of adults, teens, children and parents from different generations in order to give an overview of how things have changed since the discovery of pku 75 years ago. I plan to set it out like a timeline starting with the oldest stories and hopefully ending with the story of a family still coming to term with a positive diagnosis.
I agree that you should include the story of an adult returning to the diet, as I can confirm how difficult this can be for most people. Find someone over the age of 40 and you’ve probably found one. nGood luck with it.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional