PKU.com Community Discussion Forum What’s the Phe? phe levels? Reply To: phe levels?

#7882
Avatar of Tracie
Tracie_PKU
Member

Hi Ailwalker, nMay i ask what mom may have struggled with in order to keep the levels down?
Did the baby see the PKU Dr. regularly? nThe reason i ask is there is alot of programs for children with PKU taht are free to the family,and child.
CCS,GHPP are just 2 that i can think of off hand. nMy heart breaks for mom,and i know it takes alot of involvement with Drs.,Therapyist etc. nTo maintain a healthy level.
Tracie-PKU

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