PKU.com Community Discussion Forum Adults and PKU side effects of not staying on the diet Reply To: side effects of not staying on the diet

#7884
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fionacooney
Member

hey tracie pku. thank u for taking the time to answer my comment im not actually sure what type of PKU i have, they never really said. what is that Kuvan thing ive never even heard of it? i can only take 5 grams of protein a day, its really hard, i find im hungry all the time. i cannot eat eggs or croutons or anything like that. i have absolutely no will power at all ha i am desperate. i really want to try and do this as i find my memory is getting really bad.

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