PKU.com Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

#7918
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rmbrewer12
Member

Our doctor at UNC Chapel Hill told us when our son was born that we would not know what type of case he has until he gets into his todler years. They said the important thing is to do our blood work regularly and we talk to our dietician weekly since we are always playing a catch up game with the levels. The important thing is that you be extremely strict with the diet and keep open communication with your clinic. A label really isnt a big thing.

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