PKU.com Community Discussion Forum Parent support PKU camps Reply To: PKU camps

#7920
Avatar of Tracie
Tracie_PKU
Member

Hi Shorty,
I see you are under Dr. Kochs care.
I am too as well as Liz,and Kathy.
I swear if i could clone anyone it would be that entire team.
May i ask what kind of struggles you are having?
I just started back on diet its been about almost 6 months now.
Have you tried Kuvan yet?
That is what Dr. Koch has me on,and its actually working.(Thank God).

The diets not easy.If i can help you in any way
just let me know.

I will add you to my friends list,and we can talk if you want?

Do you live in La.,Ca.?

Tracie-PKU

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional