PKU.com Community Discussion Forum That’s PKU life! How do you keep your level down? Reply To: How do you keep your level down?

#7932
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Onazzur
Member

I’m on Kuvan. It’s an AMAZING medication that came out for people with PKU. It allows you to eat soo much more.
I don’t have PKU that bad and I have 9 pills of Kuvan a day and now I can eat WHATEVER I want! Ask your doctor about it. Some people aren’t successful with Kuvan, which sucks.
But most people get their protein intake raised and your level gets lower.
I’ve been on it 1 year now and I eat chicken, turkey, bacon, basically all meats, and ANYTHING else I want!
-Bianca

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