PKU.com Community Discussion Forum New to PKU.com phe excretion Reply To: phe excretion

#7943
Avatar of Nick
arkham
Member

Phe is, in fact, excreted from the body in people with PKU. The newborn screening test is based on that, in that it is a urine test. PKUers excrete a higher amount of phe in urine than non-PKUers, which is how a first screening for PKU is done. Non-PKUers do not excrete as much phe because their bodies break down the phe correctly, so there is less available to be excreted. As to how long it takes the body to excrete phe, I don’t know the answer to that.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional