PKU.com Community Discussion Forum That’s PKU life! How do you keep your level down? Reply To: How do you keep your level down?

#7979
Avatar of r
Onazzur
Member

Breanna, nThat’s wonderful that Kuvan has helped you! Glad to hear it.
I’m actually not on any formula, all I take is the Kuvan. I responded very well to it, I’m so thankful.
I wish they’d come out with something for everyone to respond to because I know what it’s like not being able to eat what your friends are eating or not being able to have meat.
Kuvan really changed my life and I hope it does the same for everyone else!
Best wishes to everyone! n-Bianca

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional