Community Discussion Forum Adults and PKU Kuvan,and My PHE Level Reply To: Kuvan,and My PHE Level

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4 pills a day? wow. I’m on 19 a day…I know that dosage is based on weight, but…4? My levels have gone from around 12 to…well, at my current intake of dietary phe, 6, though it can be lower if I lower my phe intake. Still have to take formula, though, but down from 3 scoops a day to 1 1/2. Good for you that your levels have improved so much and that it’s allowed you to stop formula.

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