:-S Finding a clinic with a metabolic specialist might require some travel. They’re not exactly common!! What state do you live in?? Can you contact someone like Health and Human Services and ask them for assistance regarding your financial situation? Tell them it is EXTREMELY important. At least annual checkups are essential in keeping your PKU body healthy!!! I’m betting there’s some requirement for the state to pay or something out there!! If you can’t find anything, let me know. My mom works as a social worker in Nebraska. Maybe she would know something about your state as well.