Community Discussion Forum Adults and PKU Kuvan,and My PHE Level Reply To: Kuvan,and My PHE Level

Avatar of Tracie

Yes i am very fortunate. nDr. Koch says its because of a rare gene mutation i got off of both my parents(Thanks Mom and Dad).LOL
I was on 5 pills a day,but experienced heartburn so Dr. Koch told me to cut 1 back,and lets see what happens.
I still don’t eat any high protein or any kind of meat,Chicken,fish etc.
I am a pretty strict Vegan,but as i get older i actually enjoy it.
Thanks for the compliment on my levels it feels great finally feeling like i have control nagain!

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