PKU.com Community Discussion Forum What’s the Phe? Kuvan Reply To: Kuvan

#8007
Avatar of Tracie
Tracie_PKU
Member

Just wanted to let you know that i have responded to Kuvan wonderfully.
I take only 4 pills a day,and started in Nov. My PHE then was 16.9.Now it is 9.something.
I am still a strong vegan.I think probably cause i don’t care for any type of meat,poultry,and fish products.
Plus no more formula that alone is a blessing.
I hope anyone who trys Kuvan has a good response to it.

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