PKU.com Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

#8030
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monika26
Member

Thanks for all the support and advice. Matthew is now 10 months old and his levels were in the right range for about 3 months and now they recently got back down to below 1. Docs think its just a growth spurt. I hope they are right because i sure dont want to be back to square one. Regarding how much he tolerates well he his at 237. I am very strict with his diet because of how his levels fluctuate i literally write everything down that he eats. Ive been doing that since the day we found out of his PKU. Hopefully one day i can be more relaxed

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