Community Discussion Forum Adults and PKU State coverage Reply To: State coverage

Avatar of Jennifer

I’m from Nebraska and I know I get my formula paid for!! I don’t know what I’d do if the state didn’t!! Our state ALSO now allows us basically a $2000 annual low-protein PKU food shopping spree! Probably about 15 years ago a bunch of PKUers and their parents went to the state asking for money in order to buy low-protein food products. Apparently the arguements were a success because now I only pay for my own low-protein food if I would reach the $2000 limit. This is something I think every state should adopt since it is SOOO important for us to stick to the diet, and sometimes the only way to do it is using low-pro food. However, “our” food can cost probably 10 times more than “normal” food!! I’d recommend getting your state involved in a similar program!

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