PKU.com Community Discussion Forum That’s PKU life! About to start Kuvan Reply To: About to start Kuvan

#8079
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RosieB
Member

My son started taking Kuvan early last year. We had the same problem as you had before he started so we had to wait until his levels were consistent and his records were accurate. nHis levels weren’t terribly high and he was extremely sensitive to small changes in diet. When he started on Kuvan he had such a good record of his phe intake and his blood phe that we knew the changes in his levels were a direct result of Kuvan. Good luck

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