Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

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Doctors want phe levels to be above 2 mg/dl to prevent deficiencies. Phenylalanine is an amino acid, or building block of protein which means it is found in protein. So when you restrict phe you are restricting protein as well. If you restrict it too much you can develope protein deficiencies.
Of course it is important to remember this happens over a long period of time. Everyone who has PKU is going to have some low levels and high ones at one point or another. It is prolonged high/low levels that doctors worry about.

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