Community Discussion Forum Adults and PKU Kuvan,and My PHE Level Reply To: Kuvan,and My PHE Level

Avatar of donna

Hi this is catcocoa has anyone exprance side affects from taking kuvan? I get head acks off and on also stomach pain.for the first time I been getting lower neck pain and shudder pain. I take 19 pills a day and 100 mg.I'm thinking not taking my pills this afternoon and stop takeing kuvan all together. Can anyone help me.



Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional