Community Discussion Forum New to phe excretion Reply To: phe excretion

Avatar of Meaghan

Gracie, your levels depend on if you have been taking your medicine, sticking to the diet, and other factors (such as exercsing which helps keeps levels down). I have never heard of fasting before getting a level taken. I am 20 years old and have never done so. In fact, I usually take my medicine right before I go to the hospital to get blood taken. I don't know how high a level would go because of a breastmilk feeding since the change depends on the person's tolerance but if your child is regularly consuming breastmilk already and their levels have been fine then I do not see what the problem is.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional