PKU.com Community Discussion Forum New to PKU.com new member, PKU carrier. Reply To: new member, PKU carrier.

#8174
Avatar of Elizabeth
lizzyp
Member

Been a long time replying

In response to Keisha:

My grandparents (father's side) were both carriers of PKU and it was not until my grandfather died that I found out that my father had an older brother who has PKU (my dad and auntie do not). He was put into care when he was 3 years old as my grandmother could not cope (they did not have much knowledge about it in the 50's I believe). 

When my parents decided to start a family they went for tests and Guy's Hospital London to check that my mum was not a carrier (which she wasnt). 

Mum has always told me that I am a carrier as it is inherited from my father and that I should not have aspartame in my diet.   Am I wrong in thinking this then???

Liz

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