PKU.com Community Discussion Forum That’s PKU life! Blood levels are back Reply To: Blood levels are back

#8261
Avatar of donna
catcocoa
Member

Thank you for your reply.
My dietitian side that 8.0 is a little high and even a 9.9 so you think my levels should be lower. I would be happier if it was 4.0 or even a little higher. Do you know why when I first took kuvan it was a normal level. I been on kuvan for about 3 months now and it is higher now.is kuvan suppose to do that. I eat all the same way is when I first started taking my pills.
Again thank you for your reply.
Catcocoa.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional