Community Discussion Forum That’s PKU life! Blood levels are back Reply To: Blood levels are back

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Hmm…I am not sure why that would be. Have you been eating the same amount of phe the whole time you have been taking Kuvan? Have you also been drinking your formula? I know if you do not drink your formula it can increase your phe levels.

Do you have a doctors appointment anytime soon? If so many you should ask your doctor or dietitian about this. Otherwise maybe you should try calling/emailing your dietitian.

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