PKU.com Community Discussion Forum That’s PKU life! Blood levels are back Reply To: Blood levels are back

#8262
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BreaMarie91
Member

Hmm…I am not sure why that would be. Have you been eating the same amount of phe the whole time you have been taking Kuvan? Have you also been drinking your formula? I know if you do not drink your formula it can increase your phe levels.

Do you have a doctors appointment anytime soon? If so many you should ask your doctor or dietitian about this. Otherwise maybe you should try calling/emailing your dietitian.

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