PKU.com Community Discussion Forum What’s the Phe? Kuvan Reply To: Kuvan

#8331
Avatar of Janice
mommyof3
Member

Yes I would like to know what side effects you had also, my 2 children will take there first dose on Frid. the 21st, I am extremly excited and a nervous wreck all at the same time.  Side effects are a large part of the nervousness.  Any  information would be great
thanks

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional