Are you currently being seen by a doctor and dietitian for your PKU? If you aren't I suggest asking local hospitals near you, so they can set you up with a clinic. You may need to decrease your phe intake even more. Also be sure you are getting enough calories. For some people who have PKU if they do not get enough calories each day their bodies begin to break down muscle tissue for the nutrients and energy that it needs. Muscle is pure protein, so if this happens (it's called catabolism) it can increase your phe levels.