PKU.com Community Discussion Forum New to PKU.com I've never even heard of PKU… Reply To: I've never even heard of PKU…

#8361
Avatar of Chad
slmdcivic02
Member

Thank you I have already met another family who one of my friends knows that have 2 children with PKU on is only 3 months older than Marley so they will be in school together which will be good. I don't know af any other families here in Lubbock that have this but we will be going back and forth to Dallas and there are some families we can talk to there and they have camps and outings there that we will be working on getting into. We are enjoying Marley very much and in no way are we treating her any different because really she isn't different. She is a good baby very alert and looks like she is taking the world in looking around all the time. She likes to look around and observe everything that is going on around her. I will be happily passing down all my useless knowledge down to her ( I'm a geek at heart)

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