Community Discussion Forum Adults and PKU effects of PKU Reply To: effects of PKU

Avatar of Roisin

to be honest, my diet has always been on/off.  i stick to it really well, but i can go off it any time and eat foods full of protein.  i have heard of young children who tasted meat and been so ill they had to go to hospital.

i also see alot of comments about depression, which i do not suffer from, though i do notice that i am happier and more alert on my diet.
the doctors have always said that my pku is tougher than others because i have blonde hair and blue eyes – making me limited to 4 1/2 exchanges.

i wonder why i have not reacted to 'harmful' foods in the same ways as others? has anybody else reacted to too much protein and how? i only feel a difference over a long period of time, where i feel muscle pains

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