Community Discussion Forum New to My Baby have PKU Reply To: My Baby have PKU

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I'm from Bulgaria.

Now afther 1 month result is 7 and going down, but very slow. Shi is on 200 mg phenylanine per day.

For me this is strange becouse in the begining he eat 300+ phenylanine per day and their results going down faster. Now is on 200 mg and Phe going down near 1 mg per day.

I expect up to 5 – 7 days to be in norm (2 – 4 Phe).

For me from 30 Phe to 7 Phe for 19 days is too slow :(

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