PKU.com Community Discussion Forum Parent support problem with Doctors Reply To: problem with Doctors

#8435
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katiemag16
Participant

Brea is absolutely correct – I find when I am sick or even not as active as I usually am (with exercise) that can cause my levels to go up quite a bit!  Over my years with PKU, I have had higher levels (10-12), but they were there usually only a short amount of time… long-term is where it can become a problem!

Hey Breanna,

I was at an event a couple weeks ago and someone from Biomarin told me it should be ready in a year… I was pretty surprised myself since I have not seen it advertised… Let's hope it is true :)  However, for everyone who is new at this – it does become easier and you learn what exactly you can and cannot eat pretty quick!

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