Community Discussion Forum Parent support problem with Doctors Reply To: problem with Doctors

Avatar of Chad

Gracie I feel your frustration!! sometimes we don't get Marley's levels back for  awhile. Her levels have been good so far but we live in Lubbock, TX we drive 5 1/2 hours to our doctor in Dallas and our blood work gets sent to Austin. It just seems like there should be a more efficient way of doing this. But if the self monitoring system comes out we are all over that.  Our dietician is awesome though she has been such a big help for us. I'm sure we could find a doctor here that could possibly help us but I want someone with a proven track record of success and that is what I am getting You should not settle untill you are happy with your sons care.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional