Community Discussion Forum Adults and PKU off days Reply To: off days

Avatar of Kellie

Also meant to say that I have bad days too and sometimes I don't have my formula for a couple of days but then I start to feel really tired and just not myself. I also start to worry about things like getting oestoporosis when I am older and other health problems from not getting enough vitamins and minerals so that gives me motivation to get back on track.

Batwomen congratulations on having twins!! That is very exciting! How is the maternal diet going? Do you have any other children or is this your first pregnancy? I have two healthy boys. The hard work is so worth it in the end!

Nicole1982 were you on PKU exchange a while ago? I think I spoke to you on there a couple of times ages ago.

pkumommy1013 when you said you feel it not having your formula, how does it effect you?

Thanks :)


Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional