Community Discussion Forum New to New here…Adult w/ PKU Reply To: New here…Adult w/ PKU

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I was off diet for 34 years. Just started back in Feburary due to effectes of PKU which have never effected me before. I tried Kuvan but had adverse reaction to it and needed to be taken off after 7 days. I am working on an applcation for PKUers. You can find more on facebook looking for PKU Tools or go to

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Parent/caregiver of an infant with PKU
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