Community Discussion Forum Adults and PKU Formula for my husband Reply To: Formula for my husband

Avatar of Terri

This is for Newatthis…I read your story about your husband w/ PKU…I am not sure…what was his level? I am 46 and have CPKU…untreated my level is 25 mg…Im just really curious..Good luck with him goin back on diet..I personally believe nothing has worked for me w/ PKU like the diet…although I do the the development of Kuvan was great! been waiting for that for 15 yrs…been hearing about it…

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