Community Discussion Forum New to New here…Adult w/ PKU Reply To: New here…Adult w/ PKU

Avatar of cindy

hi terri im 40 yrs old with 2 boys 18 an 13. i have classic pku an was taken off the diet when i was 9yrs old. the only time i went back on it was when i was pregnant so  most of my life ive been off the diet. ive thought about going back but to be honest im not sure if i could handle eating the food an formula after years of eating anything i want. im sure my phe levels are off the roof right now. ive wanted to find other pku adults who understnad whats its like living with pku. im glad i found this site.

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