I agree with Brenda. Speak with your BPPS representative and see what they can do to help. I started Kuvan before it was FDA approved, so at first my Kuvan was provided by Biomarin. When the study I was in ended Biomarin continued providing my Kuvan until my insurance situation was figured out.
I understand that it will take sometime to getting used to not having those 'reminders' from your pharmacy that your perscription is running out. It might help to figure out how long a supply will last and write on your calender two weeks prior to running out that you need to contact your pharmacy.