PKU.com Community Discussion Forum Parent support question about weekly phe test Reply To: question about weekly phe test

#8620
Avatar of Breanna
BreaMarie91
Member

I was told by a few of my childhood PKU doctors that it does not matter when you do blood tests. Phe levels fluctate throughout the day, so no matter what you do if you do a phe level in the morning it could be completely different by night. Like Katie I try to be consistent by doing my phe levels right before going to sleep, but in the end it does not matter. Blood tests are just used to be sure that the amount of phe you are consuming is the proper amount.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional