Community Discussion Forum Adults and PKU Should I be tested? Reply To: Should I be tested?

Avatar of Grace

I would agree with Breanne you do not probably have PKU that would require a diet restriction, but I would cut aspartame out of your diet, aspartame it not good for anyone and it is toxic to the brain for anyone…but it especially damaging to people with pku because they can't process this amino acid properly…I have heard of many people having these types of issues with aspartame with different levels of severity.

There would be no harm in getting the blood spot done that way you would never have to question it but you would have to go to a doctor to get the results and they may not think it necessary to do the test…Let us know what you find out…

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional