Thank you guys…I will def talk to the clinic about keeping as much breastmilk as possible. They didn't say I would have to quit they just said breastmilk is typically the first thing to go out of the three (breastmilk, formula, and solids). They are great so I'm sure they'll work with me!
BreaMarie…..I email your mom at least once a week! She has been wonderful and so reassuring for me! I feel like I must be driving her nuts with all my questions but she just keeps the answers coming and never makes me feel like I'm bothering her!
I keep wondering what people with PKU and their families did before the Internet….and feel so lucky that I have a community!