PKU.com Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

#8710
Avatar of Monika
monika26
Member

Its  been a long time since i've been on here.Life has been busy. but i do  come here with a question. How high do peoples levels get when they are sick. My son has been doing great..he is on kuvan and his levels have been stable between 2-3 but recently his level was a 6.7 and then a couple days later he got sick nothing serious just a nasty cough and runny nose. but then after a few days he seemed back to his old self so we went in to check his level and the results came back at 11..so now im a littlle worried? any reasons why it might have gone up so much?

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