PKU.com Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

#8717
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monika26
Member

Thanks Brea.yes i did talk to jessica and we will be starting matthew on phenex 2 and see how that goes. I do think it is a growth spurt. i guess it just worried me that it was an 11 especially since hes on kuvan i thought that even if hes sick they wouldnt go up that much..oh well guess i was wrong. but i guess an 11 is normal for when your sick .im less paranoid since we went to the padow thing this weekend in sheboygan. It was fun and also very informative:)

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