Community Discussion Forum What’s the Phe? questions about Kuvan and self phe test Reply To: questions about Kuvan and self phe test

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The girls above provided with your great answers.  I just wanted to say congrats on your baby.  I am a 25 year old living with PKU since birth.  Often times, newborn parents only here what can happen if your child does not follow diet.  What really you do need to hear is there are many people with PKU who live and function happily and normal as an adult.  If you should need anything at all, please do not hesitate to ask.  Keep using this website too.  It is a great resource :)


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