Community Discussion Forum Adults and PKU Best Clinics Reply To: Best Clinics


Healthcare for PKU Adults in Australia now and in the future is a priorty for us to work on as the expert doctors in PKU are treating children and the adult's have been left to fend for themselves basically. The medical professionals I am sure are trying to help it isn't affective or good enough . As you all know PKU and rare metabolic disorders are specialised area of medicine and with the adults ageing there probably will be other health issues that need to be addressed. I have a meeting with the leader of the opposition party here in NSW and the local member on Monday to see if I can get some assistance. The meeting will be interesting!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional