Healthcare for PKU Adults in Australia now and in the future is a priorty for us to work on as the expert doctors in PKU are treating children and the adult's have been left to fend for themselves basically. The medical professionals I am sure are trying to help it isn't affective or good enough . As you all know PKU and rare metabolic disorders are specialised area of medicine and with the adults ageing there probably will be other health issues that need to be addressed. I have a meeting with the leader of the opposition party here in NSW and the local member on Monday to see if I can get some assistance. The meeting will be interesting!